From NAA:
Radio talk show host Michael Savage, made disparaging comments on autism, and drew outrage from the media and advocates for families affected by autism. Sabeeha Rehman, Pres. of NAA New York Metro, was interviewed by WPIX CW11 and asked to explain autism, and her reaction to the comments. Segments of the interview were aired on the news Friday, July 18. child-autism-parent-cafe.com
Watch the video clipping of the news segment and the interview here
From: New York State Advocacy Central for Autism
Mike Savage probably thinks the shock value of what he said will enhance his place in the lore of conservative talk radio. He probably figures he will make more money as a result of his comments. We should not let him become even more wealthy by stepping on the hearts of our disabled children.
We can hit him, his advertisers and investors in the pocketbook, the only place he seems to understand or care about.
Click here to take action now!
Send the link to family and friends. You will have a great impact at disciplining or removing this guy from the airwaves. The email we set up will go to his superiors, the investors who run the stations he is on, and our many important politicians. Just go to the site, send the memo, and please tell your friends.
Monday, July 21, 2008
Wednesday, July 09, 2008
Who pays for autism treatment?
An explosion in the number of children diagnosed has parents,
insurers and state and private institutions battling over coverage.
The case of Andrew Arce is a window into the conflict.
By Lisa Girion
Los Angeles Times Staff Writer
July 6 2008
By the time Andrew Arce was 15 months old,
his parents suspected he was autistic.
View complete article
To learn practical ways to help, plan and manage daily living with autism visit: www.child-autism-parent-cafe.com.
The law firm below represents families that have been denied care from insurance companies or assistance in obtaining treatment for autism from insurance companies for their kids with an Autism Spectrum Disorder.
Law Offices of Scott C. Glovsky
225 S. Lake Ave., Suite 1000
Pasadena, CA 91101
Toll Free: (877) 316-2093
insurers and state and private institutions battling over coverage.
The case of Andrew Arce is a window into the conflict.
By Lisa Girion
Los Angeles Times Staff Writer
July 6 2008
By the time Andrew Arce was 15 months old,
his parents suspected he was autistic.
View complete article
To learn practical ways to help, plan and manage daily living with autism visit: www.child-autism-parent-cafe.com.
The law firm below represents families that have been denied care from insurance companies or assistance in obtaining treatment for autism from insurance companies for their kids with an Autism Spectrum Disorder.
Law Offices of Scott C. Glovsky
225 S. Lake Ave., Suite 1000
Pasadena, CA 91101
Toll Free: (877) 316-2093
Thursday, July 03, 2008
NY: All New Vaccine Mandates Squashed
Parents are Powerful
From A-CHAMP:
New York Assembly Bill A 10942, the "worst vaccine bill ever" and the mandatory meningococcal vaccine bill are dead. And they were killed by parents who aren't going to let pharma kick them around anymore.
Another vaccine bill that would have allowed minors to get vaccines for sexually-transmitted diseases without parents permission or knowledge went down to defeat when the Assembly Health committee refused to even consider it.
This represents the fourth defeat in a row, with no wins, for the vaccine industry in New York, last year an mandatory HPV bill was killed.
Read full article
From A-CHAMP:
New York Assembly Bill A 10942, the "worst vaccine bill ever" and the mandatory meningococcal vaccine bill are dead. And they were killed by parents who aren't going to let pharma kick them around anymore.
Another vaccine bill that would have allowed minors to get vaccines for sexually-transmitted diseases without parents permission or knowledge went down to defeat when the Assembly Health committee refused to even consider it.
This represents the fourth defeat in a row, with no wins, for the vaccine industry in New York, last year an mandatory HPV bill was killed.
Read full article
Wednesday, June 18, 2008
New York Metro Chapter of the National Autism Association
From NAA... If you have been coming to the NYC meetings, but have not joined, please take a moment to go here: http://www.nationalautismassociation.org/join.php and join through the national website.
Reasons to join the NAA!
- Supports treatments that help our children, including biomedical treatments
- Provides outreach and support for families who have just been diagnosed
- Offers member discounts from certain companies that provide supplements for autistic children http://www.nationalautismassociation.org/join.php.
- Supports relevant autism research, including a current study exploring the link between mercury and autism: http://www.nationalautismassociation.org/researchmercury.php.
- Distributes email updates on relevant legislative activity
- Connects you to a large network of families and practitioners in the autism community
When you join NAA, you automatically become a member of the New York Metro Chapter. You will benefit from the local monthly educational sessions geared towards families, educators and caregivers affected by Autism and receive help from our NAAvigators who will help families navigate the system.
For autism information and practical strategies visit: child-autism-parent-cafe.com.
Reasons to join the NAA!
- Supports treatments that help our children, including biomedical treatments
- Provides outreach and support for families who have just been diagnosed
- Offers member discounts from certain companies that provide supplements for autistic children http://www.nationalautismassociation.org/join.php.
- Supports relevant autism research, including a current study exploring the link between mercury and autism: http://www.nationalautismassociation.org/researchmercury.php.
- Distributes email updates on relevant legislative activity
- Connects you to a large network of families and practitioners in the autism community
When you join NAA, you automatically become a member of the New York Metro Chapter. You will benefit from the local monthly educational sessions geared towards families, educators and caregivers affected by Autism and receive help from our NAAvigators who will help families navigate the system.
For autism information and practical strategies visit: child-autism-parent-cafe.com.
Friday, June 13, 2008
GAO Report on Federal Disability Programs
From Margaret Dunkle, Director, Early Identification and Intervention Collaborative for Los Angeles County and Senior Fellow, Center for Health Services Research & Policy, George Washington University
The Government Accountability Office May 20th report on Federal Disability Programs: More Strategic Coordination Could Help Overcome Challenges to Needed Transformation has a lot going for it. But it’s not the first place one would normally look to find a jazzy report with tough recommendations. GAO recommends that Congress create a new coordinating entity to make more than 200 federal programs in 20 agencies dealing with disabilities fit together for real people. Noting these programs typically have different missions, goals, funding streams and eligibility criteria. And it is generally left to the people with disabilities and their families to figure out how to navigate the confusing maze of services, supports and benefits.
Interestingly, by focusing primarily on adults with disabilities and pretty much ignoring children with disabilities, this report actually underestimates the extent of fragmentation and confusion. You can find the full GAO report at: http://www.gao.gov/new.items/d08635.pdf. child-autism-parent-cafe.com
The Government Accountability Office May 20th report on Federal Disability Programs: More Strategic Coordination Could Help Overcome Challenges to Needed Transformation has a lot going for it. But it’s not the first place one would normally look to find a jazzy report with tough recommendations. GAO recommends that Congress create a new coordinating entity to make more than 200 federal programs in 20 agencies dealing with disabilities fit together for real people. Noting these programs typically have different missions, goals, funding streams and eligibility criteria. And it is generally left to the people with disabilities and their families to figure out how to navigate the confusing maze of services, supports and benefits.
Interestingly, by focusing primarily on adults with disabilities and pretty much ignoring children with disabilities, this report actually underestimates the extent of fragmentation and confusion. You can find the full GAO report at: http://www.gao.gov/new.items/d08635.pdf. child-autism-parent-cafe.com
Wednesday, June 04, 2008
Autism & Me
The author of "Autism & Me," a photo/essay book explains autism through the voices of typical siblings, and features 14 pairs of siblings ranging in age from four to fourteen.
Each entry in the book contains an essay from the typical child along with photos of both siblings. The book will be published in the fall of '09.
In the interest of portraying autism's effect on all races and ethnic groups, author needs to include African-American families.
For parents that are interested, contact Ouisie at: ouisies@gmail.com. A very informal home interview with their typical child to get their thoughts about autism will be scheduled at a convenient time (before the end of June). The interview will take about 20 minutes followed by a fun photo session with both kids for about 30-45 minutes. Photos will be taken at home, the playground, in their backyard or wherever the kids feel most comfortable.
Some of the interview questions are:
*What does it mean to have autism?
*What do you think it would feel like to have autism?
*How different do you think you and your sibling are from other sisters and brothers?
* What would you like to tell readers of this book about your sister/brother?
* What are some of your sister/brother=92s favorite activities?
*What kinds of things do you and your sister/brother do together?
*What things bug you about your sister/brother?
*What do you wish your sister/brother could do that s/he can do?
*What are some things that your sister/brother can do that you can't do?
*What do you think your sister/brother's life will be like when s/he grows up?
*What do you think your life would be like if you didn't have a sister or brother with autism?
child-autism-parent-cafe.com
Each entry in the book contains an essay from the typical child along with photos of both siblings. The book will be published in the fall of '09.
In the interest of portraying autism's effect on all races and ethnic groups, author needs to include African-American families.
For parents that are interested, contact Ouisie at: ouisies@gmail.com. A very informal home interview with their typical child to get their thoughts about autism will be scheduled at a convenient time (before the end of June). The interview will take about 20 minutes followed by a fun photo session with both kids for about 30-45 minutes. Photos will be taken at home, the playground, in their backyard or wherever the kids feel most comfortable.
Some of the interview questions are:
*What does it mean to have autism?
*What do you think it would feel like to have autism?
*How different do you think you and your sibling are from other sisters and brothers?
* What would you like to tell readers of this book about your sister/brother?
* What are some of your sister/brother=92s favorite activities?
*What kinds of things do you and your sister/brother do together?
*What things bug you about your sister/brother?
*What do you wish your sister/brother could do that s/he can do?
*What are some things that your sister/brother can do that you can't do?
*What do you think your sister/brother's life will be like when s/he grows up?
*What do you think your life would be like if you didn't have a sister or brother with autism?
child-autism-parent-cafe.com
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