Advocates of the Ridge school in Dutchess County, NY are trying to get Regional approval with the state, which means education programs for our children with autism in their own community.
Please sign and forward The Respect and Justice for Ridge School Petition. Our children and loved ones will benefit from this program. You must live in New York State to sign the petition. Thanks!
Showing posts with label Action Alert. Show all posts
Showing posts with label Action Alert. Show all posts
Thursday, March 26, 2009
Friday, February 06, 2009
NYS Proposal to Cut SSI Benefits
(E-mail excerpt from Autism Speaks)
Although there has been no increase in the state supplement
for 20 years, this year the New York Executive Budget is proposing
to cut the state supplement to Social Security Insurance (SSI) payments
for New Yorkers who are aged, blind or have a disability, such as autism.
The proposed legislation would cut benefits by over 25% for individuals
and couples living alone in the community and 45-70% for those living
with other and are scheduled to occur in June 2009. Now more than
ever we need to preserve the safety net for those with autism who
are SSI beneficiaries.
How You Can Help:
1. Contact Governor David Paterson and your state representatives today!
Tell them that individuals with autism depend on this income to provide for
their most basic needs, including housing and food. These proposed cuts will
result in more people with autism being forced into costly institutional
settings because they can't get the support they need to remain in their own
homes.
Governor David Paterson - (518) 474-8390
2. Forward this e-mail to everyone you know and ask them to take action too.
To learn more about Autism Votes, an initiative of Autism Speaks focused on
federal and state legislative advocacy, please visit http://www.autismvotes.org/.
Although there has been no increase in the state supplement
for 20 years, this year the New York Executive Budget is proposing
to cut the state supplement to Social Security Insurance (SSI) payments
for New Yorkers who are aged, blind or have a disability, such as autism.
The proposed legislation would cut benefits by over 25% for individuals
and couples living alone in the community and 45-70% for those living
with other and are scheduled to occur in June 2009. Now more than
ever we need to preserve the safety net for those with autism who
are SSI beneficiaries.
How You Can Help:
1. Contact Governor David Paterson and your state representatives today!
Tell them that individuals with autism depend on this income to provide for
their most basic needs, including housing and food. These proposed cuts will
result in more people with autism being forced into costly institutional
settings because they can't get the support they need to remain in their own
homes.
Governor David Paterson - (518) 474-8390
2. Forward this e-mail to everyone you know and ask them to take action too.
To learn more about Autism Votes, an initiative of Autism Speaks focused on
federal and state legislative advocacy, please visit http://www.autismvotes.org/.
Parents United Learning the Special Education System
PULSES
Parents United Learning the Special Education System
The Ridge School, a private school for high functioning Asperger's students in
Hyde Park, has been denied state approval to serve students with disabilities.
According to the NYS Department of Education, a private school serving
Asperger's students in Dutchess County is not needed at this time.
Come To The: Ridge School Rally
Saturday, February 14th, 1 Pm
Goshen Inn, 40 Park Place, Goshen
Support this school in their quest to become an approved special education
school.
For more information contact:
Kathy Silgailis (845) 987-8054 or silgailisk@wpunj.edu
child-autism-parent-cafe.com
Parents United Learning the Special Education System
The Ridge School, a private school for high functioning Asperger's students in
Hyde Park, has been denied state approval to serve students with disabilities.
According to the NYS Department of Education, a private school serving
Asperger's students in Dutchess County is not needed at this time.
Come To The: Ridge School Rally
Saturday, February 14th, 1 Pm
Goshen Inn, 40 Park Place, Goshen
Support this school in their quest to become an approved special education
school.
For more information contact:
Kathy Silgailis (845) 987-8054 or silgailisk@wpunj.edu
child-autism-parent-cafe.com
Monday, July 21, 2008
News Segment on Radio Talk Host Negative Autism Comments
From NAA:
Radio talk show host Michael Savage, made disparaging comments on autism, and drew outrage from the media and advocates for families affected by autism. Sabeeha Rehman, Pres. of NAA New York Metro, was interviewed by WPIX CW11 and asked to explain autism, and her reaction to the comments. Segments of the interview were aired on the news Friday, July 18. child-autism-parent-cafe.com
Watch the video clipping of the news segment and the interview here
From: New York State Advocacy Central for Autism
Mike Savage probably thinks the shock value of what he said will enhance his place in the lore of conservative talk radio. He probably figures he will make more money as a result of his comments. We should not let him become even more wealthy by stepping on the hearts of our disabled children.
We can hit him, his advertisers and investors in the pocketbook, the only place he seems to understand or care about.
Click here to take action now!
Send the link to family and friends. You will have a great impact at disciplining or removing this guy from the airwaves. The email we set up will go to his superiors, the investors who run the stations he is on, and our many important politicians. Just go to the site, send the memo, and please tell your friends.
Radio talk show host Michael Savage, made disparaging comments on autism, and drew outrage from the media and advocates for families affected by autism. Sabeeha Rehman, Pres. of NAA New York Metro, was interviewed by WPIX CW11 and asked to explain autism, and her reaction to the comments. Segments of the interview were aired on the news Friday, July 18. child-autism-parent-cafe.com
Watch the video clipping of the news segment and the interview here
From: New York State Advocacy Central for Autism
Mike Savage probably thinks the shock value of what he said will enhance his place in the lore of conservative talk radio. He probably figures he will make more money as a result of his comments. We should not let him become even more wealthy by stepping on the hearts of our disabled children.
We can hit him, his advertisers and investors in the pocketbook, the only place he seems to understand or care about.
Click here to take action now!
Send the link to family and friends. You will have a great impact at disciplining or removing this guy from the airwaves. The email we set up will go to his superiors, the investors who run the stations he is on, and our many important politicians. Just go to the site, send the memo, and please tell your friends.
Thursday, January 31, 2008
“Eli Stone” Vaccine/Autism story line airs TODAY
Action Alert from National Autism Association:
Please take a couple of minutes to call ABC and thank them for not bowing to pressure from drug companies and the American Academy of Pediatrics to cancel “Eli Stone,” scheduled to air tomorrow, January 31 at 10:00 Eastern. This network needs to hear from parents of vaccine-injured children, whose stories have been successfully swept under the rug by Big Pharma for years. This is an important step in getting the truth about vaccine-injured children into the mainstream where it belongs.
We heard from an ABC employee yesterday who commented that so far, the overwhelming majority of comments the network had received were from the medical community—on both sides of the issue. When asked her thoughts after viewing the “Eli Stone” episode this same employee stated, “I had no idea about this issue. My eyes got watery.” We need to let the people at the network know of the profound effect vaccine injuries have had upon families, and now is our chance to do just that.
WHO TO CALL:
Ms. Hope Hartman, ABC Network Vice President of Media Relations 818.460.6360.
We’ve been told that Ms. Hartman has input on which resources are offered to viewers after the episode airs and upon any follow-up programming as well.
WHEN TO CALL:
Today: January 31
POINTS TO MAKE:
-ABC needs to hear a big “thank you” from our community
-Ask that the National Autism Association (nationalautism.org) and other advocacy organizations be included with resources following the show. They are going to provide the CDC’s website -- parents exposed to this topic for the first time need alternate resources that can help their children
-Ask for a follow-up to the show on ABC’s Nightline, including experts on recovering children through autism medical treatments
-Please tell them about your family and why the vaccine-injury story line is important to you
-There’s not much time, so please give ABC a call ASAP and let them know the significance of addressing the vaccine/autism connection through “Eli Stone.”
Together, we can make a difference.
Please take a couple of minutes to call ABC and thank them for not bowing to pressure from drug companies and the American Academy of Pediatrics to cancel “Eli Stone,” scheduled to air tomorrow, January 31 at 10:00 Eastern. This network needs to hear from parents of vaccine-injured children, whose stories have been successfully swept under the rug by Big Pharma for years. This is an important step in getting the truth about vaccine-injured children into the mainstream where it belongs.
We heard from an ABC employee yesterday who commented that so far, the overwhelming majority of comments the network had received were from the medical community—on both sides of the issue. When asked her thoughts after viewing the “Eli Stone” episode this same employee stated, “I had no idea about this issue. My eyes got watery.” We need to let the people at the network know of the profound effect vaccine injuries have had upon families, and now is our chance to do just that.
WHO TO CALL:
Ms. Hope Hartman, ABC Network Vice President of Media Relations 818.460.6360.
We’ve been told that Ms. Hartman has input on which resources are offered to viewers after the episode airs and upon any follow-up programming as well.
WHEN TO CALL:
Today: January 31
POINTS TO MAKE:
-ABC needs to hear a big “thank you” from our community
-Ask that the National Autism Association (nationalautism.org) and other advocacy organizations be included with resources following the show. They are going to provide the CDC’s website -- parents exposed to this topic for the first time need alternate resources that can help their children
-Ask for a follow-up to the show on ABC’s Nightline, including experts on recovering children through autism medical treatments
-Please tell them about your family and why the vaccine-injury story line is important to you
-There’s not much time, so please give ABC a call ASAP and let them know the significance of addressing the vaccine/autism connection through “Eli Stone.”
Together, we can make a difference.
Monday, April 02, 2007
Drug Compounding In Jeopardy
Proposed bill would give the FDA full control over compounding
Senators Kennedy (D-MA), Burr (R-NC) and Roberts (R-KS) have circulated a
copy of proposed draft legislation that would greatly restrict access to
compounded medications. The legislation would severely restrict and possibly
deny your access to critical medications. According to Parents and
Professionals for Customized Care (PsC2), if this legislation passes, federal regulators, not your doctor, will decide what medicines you can take.
The so-called Safe Drug Compounding Act of 2007 would, among other things, broadly eliminate the availability of many critical, commonly compounded medications that many patients rely on.
Dr. Jaquelyn McCandless states that [for the autism community], "this means
that our children would not be able to obtain MB-12 (nasal or injections),
LDN, detoxification agents such as DMSA and DMPS, secretrin, transdermals
(such as NAC, TTFD, ALA, GSH), etc. (not to mention bio-identical natural
hormone replacement and many other extremely important health items that
have to be compounded). This is clearly written to benefit pharmaceutical
companies, which is also behind the move to restrict or eliminate many of
our vitamin- nutrient compounds. We have to become activists to protect our
children; it would be devastating to not be able to get many of these
compounds that are helping kids to an unprecedented degree now."
What can you do? Act now to stop this dangerous legislation! Write your
elected representatives in Congress. Use P2C2's easy to use tool to write
your members of Congress. child-autism-parent-cafe.com
Take Action Now!
Senators Kennedy (D-MA), Burr (R-NC) and Roberts (R-KS) have circulated a
copy of proposed draft legislation that would greatly restrict access to
compounded medications. The legislation would severely restrict and possibly
deny your access to critical medications. According to Parents and
Professionals for Customized Care (PsC2)
The so-called Safe Drug Compounding Act of 2007 would, among other things, broadly eliminate the availability of many critical, commonly compounded medications that many patients rely on.
Dr. Jaquelyn McCandless states that [for the autism community], "this means
that our children would not be able to obtain MB-12 (nasal or injections),
LDN, detoxification agents such as DMSA and DMPS, secretrin, transdermals
(such as NAC, TTFD, ALA, GSH), etc. (not to mention bio-identical natural
hormone replacement and many other extremely important health items that
have to be compounded). This is clearly written to benefit pharmaceutical
companies, which is also behind the move to restrict or eliminate many of
our vitamin- nutrient compounds. We have to become activists to protect our
children; it would be devastating to not be able to get many of these
compounds that are helping kids to an unprecedented degree now."
What can you do? Act now to stop this dangerous legislation! Write your
elected representatives in Congress. Use P2C2's easy to use tool to write
your members of Congress. child-autism-parent-cafe.com
Take Action Now!
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