Wednesday, April 18, 2007

Autism One 2007 Conference

Autism One 2007 Conference to be held on May 23-27, in Chicago, IL with speakers: Lisa Ackerman, Executive Director, Talk About Curing Autism (TACA), “Starting the Biomedical process - a parent's perspective.” Wendy Fournier, President, the National Autism Association (NAA), “Raise Your Voice: Politics and the Autism Research Agenda.” Portia Iversen, co-founder of Cure Autism Now (CAN), “Profoundly autistic behavior with high verbal intelligence - a new phenotype and a reason for much hope.” Lyn Redwood, RN, President, the Coalition for SafeMinds, “Mercury and Autism: Past, Present, and Future.” child-autism-parent-cafe.com

Click here for info

Monday, April 09, 2007

Looking For Families Coping With Autism

Do you have a child with autism or PDD who is 6-12 years old? The Clinical Graduate Program of the Psychology Department at the University of Massachusetts (Boston) is conducting a study that will examine how families who have a school-age child
with autism are coping. The data is being collected through a survey that is mailed to the family. Families will receive $10 after returning the survey. There is a lack of research on the impact of autism in diverse groups, and therefore they are especially interested in recruiting families that will provide racial, ethnic, economic, and religious diversity. If you are interested in participating or would like more information, please contact Meg Manning at Margaret.manning001@umb.edu or (617) 287-6318. child-autism-parent-cafe.com

Friday, April 06, 2007

Grants to support Pennsylvania families living with autism

One-time mini- grants to help individuals and families gain access to essential community services and supports.

Applications for the grants must be submitted to the Department of Public Welfare's Bureau of Autism Services by April 27, 2007. Families may be eligible for grants up to $500 which can be used for supports and activities, including child care, summer camp/recreation programs, or home modifications.

Individuals or families must be a United States citizen, a resident of Pennsylvania not currently receiving any other family support services, including waiver-funded services, Family-Driven Support Services, services funded under Individual Support Plans or county-based funds from MH/MR or other similar services or funding. child-autism-parent-cafe.com

Click here for more info

Monday, April 02, 2007

Drug Compounding In Jeopardy

Proposed bill would give the FDA full control over compounding

Senators Kennedy (D-MA), Burr (R-NC) and Roberts (R-KS) have circulated a
copy of proposed draft legislation that would greatly restrict access to
compounded medications. The legislation would severely restrict and possibly
deny your access to critical medications. According to Parents and
Professionals for Customized Care (PsC2) , if this legislation passes, federal regulators, not your doctor, will decide what medicines you can take.

The so-called Safe Drug Compounding Act of 2007 would, among other things, broadly eliminate the availability of many critical, commonly compounded medications that many patients rely on.

Dr. Jaquelyn McCandless states that [for the autism community], "this means
that our children would not be able to obtain MB-12 (nasal or injections),
LDN, detoxification agents such as DMSA and DMPS, secretrin, transdermals
(such as NAC, TTFD, ALA, GSH), etc. (not to mention bio-identical natural
hormone replacement and many other extremely important health items that
have to be compounded). This is clearly written to benefit pharmaceutical
companies, which is also behind the move to restrict or eliminate many of
our vitamin- nutrient compounds. We have to become activists to protect our
children; it would be devastating to not be able to get many of these
compounds that are helping kids to an unprecedented degree now."

What can you do? Act now to stop this dangerous legislation! Write your
elected representatives in Congress. Use P2C2's easy to use tool to write
your members of Congress. child-autism-parent-cafe.com

Take Action Now!